Blog Archives

But we never go out any more!!!

Life is not easy for the loved ones of the chronically ill. There was a big hoo-ha recently in endometriosis circles when someone dared publish an article on what endometriosis does to the sex lives of men.  It is not much of a spoiler to say …. bad stuff happens … very bad stuff happens. […]

I used to be soooo brave

Way back in the summer of 1991, just turned 18, I headed off to live in a city 1,300km from my rural town of 300 people. I took my bike, an old suitcase, a collection of tatty and unfashionable clothes and a few tools to reassemble said bike on arrival.  I swear, I went without […]

I am a Spoonie Warrior!

SIBO Warrior Princess

I’m sitting cross legged on my yoga mat, sunlight filtering in through the window onto my face, cup of tea in hand. I’m looking, listening, thinking and feeling, oh so much feeling. I can hear the mellifluous jingle of my eleven year olds fingers on the key board of the piano, and her sweet, perfect […]

Chronic Illness and the Search for the Holy Grail.

There comes a point after many moons of doctors tests and a vague incurable, poorly understood diagnosis or six (often with word ‘syndrome’ attached) that we get the Big Dr Shrug (BDS).  The BDS goes like this: well you are not dying, there is nothing seriously wrong, and nothing more I can do, um yeah, […]

Learnings from the Trenches of Illness: It is possible to heal the busyness addiction!

Sometimes there are nuggets of good in the very bad.  There is even the odd bonus in getting sick enough that surviving some days is a triumph. I have cured myself, completely, of the busyness addiction.  How many times have you asked a friend you have not seen for a while “how are you?” only […]

At least 10 things NOT to say to your loved one with chronic illness.

You must try ….. [enter any number of weird and whacky suggestions here] Chances are that one magic thing you or your Aunt Zelda tried for your bunions is not going to cure their multiple sclerosis. You may have something valuable to share that they haven’t tried.  But first just pause for a moment and […]

The Miserable, Messy lot of a Reluctant Foodie

Food Should be fun If you are following my blog and waiting for stories and pictures of me whipping up sumptuous allergy/spoonie friendly food in my clean kitchen and designer clothes: I am sorry I have bad news….. I hate cooking, I don’t much like eating, accept for other times when I adore eating.  I […]

If You Are Going Through Hell – Keep Going!

“Pain is inevitable, suffering is optional” So said someone terribly Zen like (no-one seems to know or agree quite who). This was a bitter pill for me to try and swallow this month when things in my health story took a turn for the worst. I was already living in a way that I had […]